Tag Archives: POLP

So There’s This Drug

BMN 111. I read about it briefly when I was scouring the internet in those first few months after Declan’s birth; googling ‘achondroplasia’, in search of any and all information I could get my hands on. I didn’t really dwell … Continue reading

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On Support… and a Quilt.

I’d like to talk about LPBC for a minute. Little People of BC is a not-for-profit organization for children and adults with a growth disorder or dwarfism. LPBC provides social, emotional, and educational support to the membership and their families; … Continue reading

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One Year Ago

Last year on this day I think my heart was beating a little faster, I was probably a bit anxious… I remember composing a Facebook post announcing that October is Dwarfism Awareness Month. I was also announcing (to the world, … Continue reading

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Three (or four) Things Thursday

Having a young child with achondroplasia isn’t all that different from any other kid. Well…it is and it isn’t. Yes, we have plenty of appointments and there are health concerns. I’ve blogged a bit about some of the more serious … Continue reading

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Uncomfortable

Is it possible to change ourselves? Change others? Change the world? I like to think some of that’s doable (well… maybe not others). But I’ve come to realize that it’s not possible if you stay in your comfort zone. If … Continue reading

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