Tag Archives: achon

So There’s This Drug

BMN 111. I read about it briefly when I was scouring the internet in those first few months after Declan’s birth; googling ‘achondroplasia’, in search of any and all information I could get my hands on. I didn’t really dwell … Continue reading

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The Number Game

You have an older one too, right? I met your Italian au pair. Are they twins? These are a few things that I’ve heard recently. People are confused. They think we’re the same family. They think we’re related. Actually…I don’t … Continue reading

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One Year Ago

Last year on this day I think my heart was beating a little faster, I was probably a bit anxious… I remember composing a Facebook post announcing that October is Dwarfism Awareness Month. I was also announcing (to the world, … Continue reading

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He’s Ready, But Am I?

A few months ago, at a physical therapy appointment for Declan, his PT suggested trying to progress from him holding onto my fingers as he walked, and giving him an object to hold onto instead. So at home, I tried … Continue reading

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No, I Do Not Feed My Baby Cheeseburgers

Sometimes I feel like having a sign that says this, tacked onto the stroller while we’re out and about. This morning we were at the farmer’s market. It was hot. It was busy. Declan was in the stroller and he … Continue reading

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