I’ve come to the conclusion that I need some sort of schedule to keep me updating this space regularly…so I came up with this very exciting feature for Thursdays. Plus…I like alliterations…so that’s that!
- I think I will include one dwarfism related tidbit, in with the three things. For today, I thought I would elaborate a little bit on something from my last post. You may be wondering why Declan, the almost 14 month old, isn’t sitting on his own yet. Well…I will tell you!
Babies with achondroplasia are born with low muscle tone (hypotonia). As with many things related to babies (in general), the severity of it varies from baby to baby. Even though Declan has been quite quick at reaching many of his gross motor skills, he definitely has hypotonia. Also, an achon baby’s basic anatomy makes sitting pretty darn hard. The characteristically large achon head makes them even more ‘top heavy’ than the average baby. To add to that challenge…they don’t have the same base/support (leg length!) to counter balance that heavy head. Therefore, sitting is a difficult thing for babies with achondroplasia. Some kids will even start walking before they learn to sit independently. Again, it’s dependent on the child, and what’s ‘normal’ varies. Let’s face it…nothing is normal. What the heck is normal anyways?! 😉
There are also health concerns with the spine if you try to get an achon baby to sit before they are ready to (like Declan’s PT wanted me to start doing when he was about 6 months old. Someone put a quick end to that. *Ahem*). Kyphosis of the lumbar spine is present in all babies, but because achon babies take longer to sit, stand, walk (which is when kyphosis usually ‘corrects’ itself), there is potential to make it much worse. The experts say that when a child with achondroplasia can get into a sitting position all by themselves, that it’s finally ‘okay’ and safe for them to be in that position. This is why I was so excited to find Declan sitting on his bum earlier this week! Though, he hasn’t repeated it, so he could have gotten himself there by accident. If the kyphosis is bad, the child will have to wear a brace. And if the kyphosis is not corrected, it can lead to wedging of the vertebrae and significant problems later in life. So…this mama is in no hurry, he will sit when he is ready to.
- While we were eating dinner tonight, Declan starts waving and saying “ba ba (bye bye?), dada”, over and over. I have no idea if there was meaning behind it. But he did see his dad for a millisecond today when I picked Makenna up from the pool after she went swimming with him. Gah. Broke my mama heart a little bit.
- So glad they’re mine! ❤ (Cheesy, I know. But it is heart month, after all!)